Autism has attracted a great deal of attention in
recent years, thanks to dramatically increasing rates of
diagnosis, extensive organizational mobilization,
journalistic coverage, biomedical research, and clinical
innovation. ''Understanding Autism'', a social history
of the expanding diagnostic category of this contested
illness, takes a close look at the role of emotion -
specifically, of parental love - in the intense and
passionate work of biomedical communities investigating
autism. Chloe Silverman tracks developments in autism
theory and practice over the past half-century and shows
how an understanding of autism has been constituted and
stabilized through vital efforts of schools, gene banks,
professional associations, government committees, parent
networks, and treatment conferences. She examines the
love and labor of parents, who play a role in developing
- in conjunction with medical experts - new forms of
treatment and therapy for their children. While
biomedical knowledge is dispersed through an emotionally
neutral, technical language that separates experts from
laypeople, parental advocacy and activism call these
distinctions into question.Silverman reveals how
parental care has been a constant driver in the volatile
field of autism research and treatment, and has served
as an inspiration for scientific change. Recognizing the
importance of parental knowledge and observations in
treating autism, this book reveals that effective
responses to the disorder demonstrate the mutual
interdependence of love and science. |
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