According to the 2009 census, more than five
million people living in the United States have
Alzheimer's disease or some other form of dementia. Not
reported in these statistics are the fifteen million
family caregivers who, in total, contribute seventeen
billion hours of unpaid care each year. This book
addresses the needs and challenges faced by adult
children and other family members who are scrambling to
make sense of what is happening to themselves and the
loved ones in their care. The author, an experienced
medical and science writer known for her ability to
clearly explain complex and emotionally sensitive
topics, is also a former family caregiver herself. Using
both personal narrative and well-researched,
expert-verified content, she guides readers through the
often-confusing and challenging world of dementia care.
She carefully escorts caregivers through the basics of
dementia as a brain disorder, its accompanying
behaviors, the procedures used to diagnose and stage the
disease, and the legal aspects of providing care for an
adult who is no longer competent. She also covers topics
not usually included in other books on dementia: family
dynamics, caregiver burnout, elder abuse, incontinence,
finances and paying for care, the challenges same-sex
families face, and coping with the eventuality of death
and estate management. Each chapter begins with a
real-life vignette taken from the author's personal
experience and concludes with "Frequently Asked
Questions" and "Worksheets" sections. The FAQs tackle
specific issues and situations that often make
caregiving such a challenge. The worksheets are a tool
to help readers organize, evaluate, and self-reflect. A
glossary of terms, an appendix, and references for
further reading give readers a command of the vocabulary
clinicians use and access to valuable resources.
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